The Chloe Strong Foundation
The Chloe Strong Foundation is a 501(c)(3) nonprofit organization that exists to improve the quality of life for those that struggle with the rare neurological disorder, Rett Syndrome, by providing financial assistance, support, and prayers. We aspire to educate the community, increase awareness, and help advance research to find a cure. A portion of all proceeds collected will be donated directly to the International Rett Syndrome Foundation.
What is Rett Syndrome?
Rett Syndrome is a rare neurological disorder affecting about 1 in 10,000 females. It is even more rare in males. It is caused by a genetic mutation and affects nearly every aspect of life. Rett Syndrome brings lifelong impairments such as loss of speech, seizures, scoliosis, trouble breathing, loss of ability to walk, loss of ability to eat, sleep disorders, repetitive hand movements, and heart problems. Although children with Rett Syndrome will need assistance with most activities in their daily lives, some can learn to communicate with augmentative devices, feed themselves, speak some, and even walk. They experience a full range of emotions and can take part in social, educational, and recreational activities in their homes and communities.